Nicola Griffith: So Lucky
Jan. 22nd, 2019 03:43 amNicola Griffith is not a writer to be pigeon-holed. She’s written science fiction, hard core detective stories, and stunningly well researched historical fiction. She is also a person with MS who has not been content to sit back and take received wisdom about her condition. She’s researched it with the same tenacity that has marked her writing, and explored new theories of the disease mechanism for herself.
In So Lucky, Griffith takes her experience in living with MS, in the entire spectrum of what living as disabled is like, and turns it into a compelling, enveloping story of Mara, a woman who is diagnosed with MS just as her wife of over twenty years decides to leave her for another woman. She loses her job, explores the increasingly depressing world of support groups and pharmaceutical interventions. She learns all the things you never know about how the world treats cripples until you are one. And eventually, she takes her experience in the non-profit sector and her rage and builds a new organisation modelled on the fierce personal advocacy of the early year of the HIV epidemic.
So Lucky is in some ways the story of anyone who has suddenly gone from category normal to category disabled, and it chronicles so many of the changes in status, energy, self-image, priorities... everything that changes for the disabled person, which is in most cases everything in your life. It’s powerful, and painful, and in its portrayal of becoming a crip, it is very, very real.
There’s a narrative here, of course, a story to follow, a build-up and a climax and a denouement, and it’s interesting in itself and a parable of the relation between society and the disabled. But it’s Mara’s coming to terms with her own changed status and life that’s the real story. And it’s one of the most compelling I’ve read in a very long time.
In So Lucky, Griffith takes her experience in living with MS, in the entire spectrum of what living as disabled is like, and turns it into a compelling, enveloping story of Mara, a woman who is diagnosed with MS just as her wife of over twenty years decides to leave her for another woman. She loses her job, explores the increasingly depressing world of support groups and pharmaceutical interventions. She learns all the things you never know about how the world treats cripples until you are one. And eventually, she takes her experience in the non-profit sector and her rage and builds a new organisation modelled on the fierce personal advocacy of the early year of the HIV epidemic.
So Lucky is in some ways the story of anyone who has suddenly gone from category normal to category disabled, and it chronicles so many of the changes in status, energy, self-image, priorities... everything that changes for the disabled person, which is in most cases everything in your life. It’s powerful, and painful, and in its portrayal of becoming a crip, it is very, very real.
There’s a narrative here, of course, a story to follow, a build-up and a climax and a denouement, and it’s interesting in itself and a parable of the relation between society and the disabled. But it’s Mara’s coming to terms with her own changed status and life that’s the real story. And it’s one of the most compelling I’ve read in a very long time.